Nursing students' views on trauma-informed pediatric nursing care and family-centered care.

PURPOSE: We studied the views of nursing students on family-centered care (FCC) and their knowledge, opinions, self-rated competence, current practice, and perceived implementation barriers with regard to trauma-informed pediatric nursing care. METHODS: This survey was a descriptive correlational study. The sample consisted of 261 nursing students, 3rd and 4th years, who had completed the Child Health and Diseases Nursing Course. The data were obtained using the "Student Information Form," "Family-Centered Care Attitude Scale," and "trauma-informed care (TIC) Provider Survey." RESULTS: Nursing students were knowledgeable and held favorable opinions about TIC. The survey showed that students with higher levels and those with a hospitalization experience during childhood had higher scores regarding TIC. A positive relationship was found between the students' TIC to mean score and FCC attitude mean score. CONCLUSIONS: Nursing students are not competent to practice TIC, especially with pediatric patients. Therefore, they need to develop relevant skills for helping pediatric patients. PRACTICE IMPLICATIONS: Efforts to improve nursing students' trauma-informed pediatric care should highlight specific skills related to helping pediatric patients manage emotional responses to difficult medical experiences. By integrating TIC into the baccalaureate curricula, nursing educators can provide the students with appropriate skills and facilities so that they can provide holistic and highly effective care to highly vulnerable patients.

Estágio de natureza profissional em enfermagem de cuidados de saúde à família em contexto de USF/UCSP com relatório final / Professional nursing internship in family health care in USF/UCSP context with final report

ENQUADRAMENTO: Em pleno estado de emergência devido à pandemia por Covid-19, emergiu, no desenvolvimento das competências comuns e específicas do Enfermeiro Especialista em Enfermagem de Saúde familiar em contexto de numa UCSP, a preocupação com o crescente número de famílias com elementos com sintomatologia depressiva. O sofrimento mais relatado era a incapacitados de experienciar momentos de bem-estar e de olhar o seu futuro, acompanhado de alteração do humor, ideação suicida e alienação pelo recurso a dependências. Os estudos de Viktor Frankl e investigadores existenciais logoterapeutas têm comprovado a relação entre, grande parte, desta sintomatologia e o vazio existencial ou ausência de sentido de vida, sendo a CoCIP uma competência de enfermagem que orienta na descoberta de sentido de vida. OBJETIVOS: Os objetivos definidos para a pesquisa são: 1) Mapear o conhecimento existente sobre o sentido de vida das pessoas/famílias com depressão; 2) Identificar as intervenções junto da família com um elemento com depressão. METODOLOGIA: Efetuou-se uma revisão da literatura, subjacente à seguinte questão de investigação: Qual é o conhecimento que existe sobre a importância do Sentido de vida na Pessoa com Depressão? A partir da questão PCC, foram definidas palavras-chave e realizada uma pesquisa de artigos científicos na base de dados da plataforma B-On. Na Revisão da Literatura, incluíram-se artigos, publicados nos últimos cinco anos e disponíveis gratuitamente, através dos seguintes descritores: "meaning in life" or "life purpose", "depression", "nurs*" or "family nurs*", "hospital" utilizando o operador booleano AND, OR e NOT. Da aplicação dos critérios de inclusão, foram identificados, no total, 12 artigos, dos quais, após análise dos títulos e resumos, foram selecionados quatro artigos como elegíveis e incluídos. RESULTADOS: Os resultados constataram que os sintomas depressivos diminuem a qualidade de vida e o bem-estar dos indivíduos e das famílias que sofrem desta patologia, pondo a sua vida em risco com ideações suicidas. Registou-se que a promoção do sentido de vida com intervenções do EEESF, reduz, com significância estatística, os sintomas depressivos e a forma de encarar os acontecimentos de vida. CONCLUSÃO: É fundamental que os profissionais de saúde, em especial os Enfermeiros de Família, estejam despertos e capacitados para promover a esperança e o sentido de vida das suas famílias e indivíduos. Os enfermeiros devem implementar mudanças na prática com vista à melhoria dos cuidados, procurando personalizar os cuidados às necessidades de cada família. Torna-se crucial que os enfermeiros desenvolvam competências para identificar e intervir nos processos de transição saúde - doença, orientando os cuidadores para atingirem o nível de mestria, promotor da resiliência e de esperança.

Atitudes dos enfermeiros e alunos de enfermagem, relativamente à importância da família no processo de cuidar / Relatório Final de Estágio: Atitudes dos enfermeiros e alunos de enfermagem, relativamente à importância da família no processo de cuidar / Attitudes of nurses and nursing students towards the importance of the family in the care process

A Enfermagem de família emerge como um fenómeno distinto quer para a prática de enfermagem generalista quer para a prática avançada. Os fundamentos teóricos assentam no pensamento sistémico e interacional. Defende-se uma abordagem sistémica e relação colaborativa de suporte, no cuidado à família para garantir cuidados competentes e de excelência nas intervenções de enfermagem, que acontecem reciprocamente em contexto de intersubjetividade e complexidade. A família representa para a pessoa doente uma poderosa fonte de suporte, é inerente ao processo de cuidar e encontra-se intrinsecamente envolvida no processo saúde/doença. Por isso é de suma importância a preocupação e o comprometimento de que a família seja integrada nos cuidados de saúde garantindo a promoção de saúde familiar. A evidência da lacuna entre o teórico e o prático ao nível da enfermagem levou ao estudo sobre conhecer as atitudes dos enfermeiros e alunos relativamente à importância da família no processo de cuidar, sobre a abordagem sistémica do cuidado à família, no desempenho profissional. Trata-se de um estudo de natureza quantitativo, descritivo, analítico e correlacional, realizado a uma amostra de 7 enfermeiros que exercem a sua prática numa Unidade de Saúde familiar e a um grupo de 22 alunos a frequentar a licenciatura em enfermagem. Como instrumento de colheita de dados foi utilizado o questionário de caraterização sociodemográfica e a escala IFCE-AE (A Importância das Famílias nos Cuidados de Enfermagem - Atitudes dos Enfermeiros), validada para a população portuguesa por Oliveira et al., 2009. Nos dados obtidos, em relação às variáveis sociodemográficas e profissionais que caracterizam a amostra, apenas foi possível verificar associação entre as atitudes dos enfermeiros e alunos, relativamente à importância da família no processo de cuidar, nas variáveis género e título profissional. Compreendeu-se que a família é uma unidade complexa, com necessidades e impacte no estado de saúde. Com evidência, podemos concluir que nas transições do ciclo vital, as famílias, carecem da abordagem holística dos enfermeiros de família. A enfermagem de família detém essas competências para cuidar das famílias enquanto sistema, assumindo uma posição de centralidade, sendo a formação essencial para dotar os enfermeiros de conhecimento, ferramentas e eficiência nessa otimização dos cuidados.

Family nursing emerges as a distinct phenomenon for both generalist and advanced nursing practice. The theoretical foundations are based on systemic and interactional thinking. A systemic approach and collaborative support relationship are used in the care of the family to ensure competent care and excellence in nursing interventions, which take place reciprocally in a context of intersubjectivity and complexity. Family represents a powerful source of support for an ill person, it is inherent to the care process and it is intrinsically involved in the health/disease process. That is why it is of paramount importance the concern and commitment that the family is integrated into health care, ensuring the promotion of family health. The evidence of the gap between the theoretical and the practical in terms of nursing led to a study on knowing the attitudes of nurses and students regarding the importance of the family in the care process, the systemic approach to family care, in professional performance. This is a quantitative, descriptive, analytical, and correlational study, carried out with a sample of 7 nurses who practice in a Family Health Unit and with a group of 22 students attending the degree in nursing. As a data collection instrument, the sociodemographic questionnaire and the FINC-NA scale were used, validated for the Portuguese population by Oliveira et al., 2009. In the data obtained, in relation to the sociodemographic and professional variables that characterize the sample, it was only possible to verify an association between the attitudes of nurses and students, regarding the importance of the family in the care process, in the variables gender and professional title. It was understood that a family is a complex unit, with needs and impact on the health state. With evidence, we can conclude that in the life cycle transitions, families lack the holistic approach of family nurses. Family nursing has these skills to take care of families as a system, assuming a central position, being essential training to provide nurses with knowledge, tools, and efficiency in this optimization of care.

Consequências da pandemia por COVID -19 na vida do cuidador informal / Consequences of the pandemic for COVID -19 on the life of the informal caregiver

Verifica-se, atualmente, uma elevada preocupação no que concerne ao impacto da pandemia por COVID-19 no bem-estar geral da população. Esta pandemia constitui-se como uma crise global, não só ao nível de saúde pública e de estabilidade económica, mas também de bem-estar familiar. Ao evocar questões acerca do sentido de vida, a pandemia constitui-se como uma oportunidade para a (re)descoberta de valores humanos e universais. Numa sociedade cada vez mais envelhecida, a pandemia por COVID-19 veio acentuar, ainda mais, as dificuldades vivenciadas no quotidiano dos cuidadores a vários níveis, designadamente, profissional, pessoal, financeiro e social. Perspetivada não só como a unidade básica da sociedade, mas também como foco dos cuidados de enfermagem, a família apresenta como função prioritária, o suporte e a proteção dos seus membros. Pela sua proximidade, o enfermeiro de saúde familiar conhece as singularidades de cada família, o seu potencial, as suas competências e fragilidades. Com o seu saber técnico, científico e humanístico, define estratégias de índole sistémica que potenciam a ação da família, face às necessidades específicas de cada um dos seus constituintes. Todavia, urge compreender quais são os desafios, as respostas e as adaptações que emergiram a partir desta nova realidade, visto o cenário pandémico ter condicionado a interação entre enfermeiros e famílias. Tendo por base este intuito, efetuou-se uma revisão sistemática de literatura, subjacente à seguinte questão de investigação: Quais são as consequências da Pandemia por COVID 19 na sobrecarga e sentido de vida do cuidador informal? Os objetivos definidos para a pesquisa são: 1) Avaliar a sobrecarga do cuidador informal durante o período de pandemia por COVID-19 e 2) Identificar a relação entre o sentido de vida e a sobrecarga do cuidador informal. A partir da questão PI[C]O, foram definidas palavras-chave e realizada uma pesquisa de artigos científicos na base de dados da plataforma B-On no mês de novembro de 2021. Na Revisão Sistemática da Literatura, incluíram-se artigos, publicados nos últimos seis anos e disponíveis gratuitamente nas bases de dados Academic Search Complete, Complementary Index e Medline, através dos seguintes descritores: Informal "caregiver burden", "COVID-19 or coronavirus or 2019-ncov or sars-cov-2 or cov-19", "life purpose" or "meaning in life" or "purpose in life", utilizando o operador booleano AND. Da aplicação dos critérios de inclusão, foram identificados, no total, 58 artigos, dos quais, após análise dos títulos e resumos, foram selecionados cinco artigos como elegíveis e incluídos. Relativamente aos resultados, constatou-se que a sobrecarga do cuidador variava de acordo com a doença da pessoa cuidada, sendo que as evidências comprovaram que os cuidadores de pessoas com demência e doença oncológica relataram uma maior sobrecarga de cuidados, principalmente as mulheres. Também a ansiedade, o stress crónico e a depressão (angústia e sofrimento existencial) foram geradores do sentimento de sobrecarga do cuidador, durante a pandemia por COVID-19. Registou-se que a promoção da resiliência reduz significativamente a angústia associada aos cuidados. Conclui-se que a presença da espiritualidade, da esperança e de um sentido de vida, a par da resiliência, reduzia significativamente a angústia associada aos cuidados. É fundamental que os cuidadores sejam devidamente treinados e capacitados para que alcancem maiores níveis de resiliência como a capacidade de aceitar a situação diariamente, suprindo a necessidade de a pessoa não perder a sua essência e restaurar a esperança. Torna-se crucial que os enfermeiros desenvolvam competências para identificar e intervir nos processos de transição saúde - doença, orientando os cuidadores para atingirem o nível de mestria, promotor da resiliência e de esperança.

There is currently a high concern regarding the impact of the COVID-19 pandemic on the general wellbeing of the population. This pandemic constitutes a global crisis, not only in terms of public health and economic stability, but also of family well-being. By evoking questions about the meaning of life, the pandemic constitutes an opportunity for the discovery of human and universal values. In an increasingly aging society, the COVID-19 pandemic has further accentuated the difficulties experienced in the daily lives of caregivers at various levels, namely, professional, personal, financial and social. Viewed not only as the basic unit of society, but also as the focus of nursing care, the family has, as a priority function, the support and protection of its members. Due to their proximity, the family health nurse knows the singularities of ach family, their potential, their skills and weaknesses. With his technical, scientific and humanistic knowledge, he defines strategies of a systemic nature that enhance the action of the family, given the specific needs of each of its constituents. However, it is urgent to understand what are the challenges, responses and adaptations that emerged from this new reality, since the pandemic scenario has conditioned the interaction between nurses and families. Based on this purpose, a systematic literature review was carried out, underlying the following research question: What are the consequences of the COVID 19 Pandemic on the burden and meaning of life of the informal caregiver? The objectives defined for the research are: 1) To assess the burden of the informal caregiver during the COVID-19 pandemic period and 2) To identify the relationship between the meaning of life and the burden of the informal caregiver. From the PI[C]O question, keywords were defined and a search for scientific articles was carried out in the B-On platform database in November 2021. In the Systematic Literature Review, articles published in the last six years and freely available in the Academic Search Complete, Complementary Index and Medline databases were included, using the following descriptors: Informal "caregiver burden", "COVID-19 or coronavirus or 2019-ncov or sars-cov2 or cov-19", "life purpose" or "meaning in life" or "purpose in life", using the Boolean operator AND. From the application of the inclusion criteria, a total of 58 articles were identified, of which, after analyzing the titles and abstracts, five articles were selected as eligible and included. Regarding the results, it was found that caregiver burden varies according to the illness of the person cared for, and evidence shows that caregivers of people with dementia and cancer reported a greater burden of care, especially for women. Anxiety, chronic stress and depression (anxiety and existential suffering) were also generators of the caregiver's feeling burden during the COVID-19 pandemic. It was found that promoting resilience significantly reduces care-associated distress. It is concluded that the presence of spirituality, hope and a life propouse, along with resilience, significantly reduces the anguish associated with care. It is essential that caregivers are properly trained and qualified so that they reach greater levels of resilience for the ability to accept the situation on a daily basis, meeting the need for the person not to lose their essence and restore hope. It is crucial that nurses develop skills to identify and intervene in the health-disease transition processes, guiding caregivers to reach the level of mastery, promoting resilience and hope.

O sentido de vida percebido pelo enfermeiro como foco acrescido na abordagem ao cuidador informal / The sense of life perceived by nurses as an added focus in the approach to the informal caregiver

O caminho percorrido em direção á aquisição de competências em Enfermagem de Saúde Familiar, reconhecidas como um aprofundamento, mobilização da experiência profissional e de saberes teóricos, em diferentes contextos da prática, encontra-se refletido no presente relatório. O sentido de vida constitui uma questão de base filosófica/existencial acerca do propósito e significado da existência humana. Se por um lado, a espiritualidade tem vindo a adquirir uma crescente importância no que diz respeito à qualidade de vida dos indivíduos, por outro, esta pode refletir-se na saúde dos mesmos. Tem influência na forma como este age perante os acontecimentos, levando a que sinta necessidade de cuidar e preservar a sua saúde ou, no caso de doença, a ser resiliente e, encarar esse estado de forma otimista. Neste sentido foi elaborada uma Scoping Review (ScR), direcionada para o tema sentido de vida/forças, utilizando o método PI[C]O e, tendo como questão orientadora: "O enfermeiro especialista em Saúde Familiar está sensível ao sentido de vida, como cuidado acrescido ao utente/cuidador?". A recolha de dados, inclui estudos relativos ao período de tempo decorrido entre janeiro de 2015 e dezembro de 2020, tendo sido selecionados seis estudos a partir da pesquisa nas bases de dados eletrónicas (PUBMED, EBSCO, CINAHL, MEDLINE e OPENGREY). Este tema acarreta grande responsabilidade na sua abordagem, se por um lado os enfermeiros criam a sua própria identidade, constroem a sua realidade e viabilizam-na como fonte de vida, por outro, na ótica de alguns, o trabalho está associado a um vazio existencial decorrente da impossibilidade de atender às suas próprias motivações. Perante a constante atmosfera de sofrimento, dor e incapacidade ao trabalhar com Cuidadores e famílias, que neles depositam toda a sua confiança, estes são levados a tentar perceber as forças e o sentido que cada um procura para si mesmo. Nas interpretações que se podem retirar dos estudos, é percecionado que o sentido de vida/ forças dos cuidadores e famílias se encontra presente e influencia o trabalho do enfermeiro. Relacionado com a dimensão espiritual o sentido de vida é veiculado pelo processo de Auto Transcendência, pela descoberta das forças intrínsecas e tem como potencial uma transformação pessoal e profissional de cada enfermeiro. Evidencia o seu "ser" e contribui diretamente para um melhor desenvolvimento no seu trabalho. O resultado traduz-se em benefícios potenciais para o cuidador, família e comunidade. Assim, a prática do Cuidar nesta área de mestrado não deve ser circunscrita ao conhecimento científico e técnico, mas sim extrapolar-se para uma outra dimensão tão ou mais importante, que corresponde à vertente relacional. Toda a aprendizagem, vivenciada nos diversos contextos de EC permitiu essa constatação e convergiu para um enriquecimento pessoal e profissional.

he path taken towards the acquisition of competences in Family Health Nursing, recognized as a deepening and mobilization of professional experience and theoretical knowledge, in different contexts of practice, is reflected in this document. The purpose of life is a philosophical and an existential question about the purpose and meaning of human existence. If, on one hand, spirituality has been acquiring increasing importance with regards to the individual's quality of life, on the other hand, it can be reflected in their health. It influences the way they act towards life events, leading them to feel the need to care for and preserve their health or, in the case of illness, to be resilient and face this status with an optimistic attitude. In this way, a was developed Scoping Review (ScR), directed to the theme of the meaning of life and forces, using the PI[C]O method and taking as the question: "Is the Family Health specialist nurse sensitive to the purpose of life as added care to the patient/caregiver?". Data collection includes studies related to the period of time between January 2015 and December 2020, with six studies selected from the search in electronic databases (PUBMED, EBSCO, CINAHL, MEDLINE and OPENGREY). This subject carries great responsibility. If, on one hand, nurses create their own identity, build their reality and make it viable as a source of life, on the other hand, for some, nurse's work is associated with an existential void resulting from the impossibility of attending to their own motivations. Faced with the constant atmosphere of suffering, pain and incapacity when working with caregivers and families, who places all their trust in nurses, leads them to try to understand the strength and meaning that each one seeks for himself. In the interpretations of the studies, it is perceived that the purpose of life/strengths of caregivers and families is present and influences the work of nurses. Related to the spiritual dimension, this is conveyed by the process of Self Transcendence, by the discovery of intrinsic forces and has the potential for a personal and professional transformation of each nurse. It highlights your "being" and directly contributes to a better development in your work. The result translates into potential benefits for the caregiver, family, and community. Thus, the practice of caring in this Master's subject should not be limited to scientific and technical knowledge, but rather extrapolate to another dimension that is equally or more importance, which corresponds to the relational aspect. All the learning, experienced in the different placements' contexts allowed this understanding and converged to a personal and professional enrichment.

Palliative and Hospice Care in Correctional Facilities: Integrating a Family Nursing Approach to Address Relational Barriers.

BACKGROUND: The need for palliative and hospice care for persons with life-limiting conditions who are incarcerated is increasingly common in correctional facilities worldwide. OBJECTIVE: Through a family nursing lens, we critically analyze the unique challenges experienced by those requiring palliative care while incarcerated. Key concerns and implications for nursing are illustrated through the discussion of a representative case scenario. METHODS: The case scenario was developed based on the findings of a scoping review of academic and gray literature (such as policy documents and editorials) about palliative, hospice, and end-of-life care in corrections. RESULTS: The case scenario highlights multilevel barriers that were identified, including the individual, relational, institutional, and sociocultural contexts of palliative care in correctional facilities. Evidence is presented of how integration of a family nursing perspective can enhance specialized palliative and hospice care services in correctional settings. CONCLUSIONS: By applying a family nursing approach, nurses practicing with correctional populations can ensure persons with life-limiting illnesses are not denied their right to appropriate end-of-life care by playing a key role in addressing barriers to palliative and hospice care access in corrections. Specific attention to relational issues and holistic care can contribute to enhanced palliative and hospice care, greater dignity in dying, and improved family and peer outcomes, which have benefits for individuals, families, communities, and society. IMPLICATIONS FOR PRACTICE: Through the case scenario, we illustrate real issues emerging in correctional contexts and offer evidence of how family nursing relational principles can be applied to promote adequate palliative and hospice care.

An exploration of whether mental health nurses practice in accordance with The Family Model.

BACKGROUND: The Family Model is increasingly used as a framework to promote a whole family approaches in mental health services. The purpose of this qualitative study was to (i) explore whether nurses practice in accordance with the Model when providing services for parents who have mental illness, (ii) determine whether components of the model are employed more in some workplaces (i.e. acute in-patient units versus community settings) and (iii) ascertain reasons as to why this may be the case. METHOD: A purposive sample of 14 nurses from eight mental health services in Ireland, completed semi-structured interviews. RESULTS: Findings indicated that nurses' practice incorporated most key components of The Family Model, including supporting service users' dependent children. However, some practices were not explicit in the Model, such as supporting other adult family members (i.e. grandparents). While nurses' practice in community settings was more aligned with The Family Model than in acute in-patient units, there was a notable absence of reference to domain six (cultural considerations) in both settings. A holistic and family-centered philosophy, coupled with collegial and managerial support and a focus on prevention were the main features that enabled family focused practice in community settings. CONCLUSION: As only a subgroup of nurses practice in accordance with The Family Model, efforts are required by nurses, their organisations and the broader system to promote family focused practice. The Family Model may be a useful framework, with further refinement, for guiding nurses' practice.

Weight assessment and the provision of weight management advice in primary care: a cross-sectional survey of self-reported practice among general practitioners and practice nurses in the United Kingdom.

BACKGROUND: Although primary care settings provide a large-scale and high-reach opportunity for weight management and obesity prevention, the proportion of adults in the United Kingdom (UK) who report receiving weight management advice is limited. This study examines the self-reported frequency of assessing weight and providing weight management advice by General Practitioners (GPs) and Practice Nurses (PNs) working in primary care in the UK, and differences by practitioner characteristics. METHODS: Cross-sectional survey with GPs and PNs in the UK (n = 2020), conducted January-March 2017. A mock consultation exercise assessed what factors led to calculating a patient's Body Mass Index (BMI) and whether weight management advice was given after determining the patient had an obese BMI. For all patients, practitioners were asked how often they calculated BMI, how often they gave weight management advice to patients with an obese BMI, and how often they utilised different advice or referral options (each: Always/Often vs. Less often/Never). Binary logistic regressions examined whether frequency of assessing weight and providing advice was associated with practitioner characteristics. RESULTS: In the mock consultation, physical cues (40%) were most likely to prompt calculation of BMI, and half of practitioners (56%) provided weight management advice after determining the patient had an obese BMI, with GPs less likely to do so than PNs (Odds Ratio [OR] = 0.59, 95% CI: 0.47-0.75). Half of practitioners (58%) said they calculated the BMI of all patients Always/Often, with GPs less likely to do so than PNs (OR = 0.27, 95% CI: 0.21-0.34). Three quarters (78%) said they provided weight management advice to patients with an obese BMI Always/Often, with GPs less likely to do so than PNs (OR = 0.63, 95% CI: 0.47-0.85). Weight management advice was provided more frequently than referrals, particularly suggesting increased physical activity (93%) and diet modification (89%). CONCLUSIONS: Consistent with previous research, the findings suggest that opportunities to provide weight management advice in primary care, including to patients with an obese BMI, are potentially missed. Future research should test alternative mechanisms to increase weight assessment and advice provision, examine the effectiveness of advice frequently given, and seek solutions to reported barriers for providing weight management advice.

Family Integrated Care for Preterm Infants.

Parent-infant separation is a major source of stress for parents of hospitalized preterm infants and has negative consequences for infant health and development. Family Integrated Care (FICare) uses a strengths-based approach, based on family-centered care principles to promote parental empowerment, learning, shared decision making, and positive parent-infant caregiving experiences. Outcomes of FICare include increased self-efficacy upon discharge and improved parent-infant relationships and infant developmental outcomes. In this article, the authors describe the FICare model and emerging evidence regarding outcomes of FICare for infants and families and discuss challenges and opportunities in implementing and maintaining high-quality FICare.

Cuidado familiar à criança e ao adolescente com epidermólise bolhosa: uma revisão integrativa da literatura / Cuidado familiar para niños y adolescentes con epidermólisis ampollosa: una revisión integradora de la literatura / Family care with children and adolescents with epidermolysis bullosa: an integrative literature review

Objetivo: analisar como é realizado o cuidado familiar de crianças e adolescentes com Epidermólise Bolhosa. Método: revisão integrativa da literatura, realizada em setembro de 2018 com protocolo pré-definido, em que os critérios de elegibilidade contemplaram oito estudos na amostra final, que responderam à seguinte questão: Como é realizado o cuidado familiar de crianças e adolescentes com Epidermólise Bolhosa? Resultados: o cuidado da família junto a seus filhos com Epidermólise Bolhosa é influenciado pela assistência dos profissionais de saúde, que desconhecem a doença e, portanto, não proporcionam as orientações necessárias, deixando os pais despreparados para cuidar cotidianamente dos seus entes. Conclusão: a literatura científica pouco se aproxima da experiência desse cuidado, no âmbito da família, dedicado aos seus filhos acometidos pela Epidermólise Bolhosa.

Objetivo: analizar la forma en que se realiza el cuidado familiar de los niños y adolescentes con Epidermólisis Ampollosa. Método: revisión integradora de la literatura, celebrada en septiembre de 2018 con protocolo pre-definido, en el que los criterios de elegibilidad incluyeron ocho estudios en la muestra final, que responden a la siguiente pregunta: Cómo se realiza el cuidado familiar de los niños y adolescentes con Epidermólisis Ampollosa? Resultados: el cuidado de la familia, junto a sus hijos con la Epidermólisis Ampollosa, es influenciado por la asistencia de los profesionales de la salud, que no conocen la enfermedad y, por lo tanto, no proporcionan la orientación necesaria, dejando los padres no preparados para el cuidado diario de su ente amado. Conclusión: la literatura científica poco aborda la experiencia del cuidado de la familia, dedicado a sus hijos afectados por la Epidermólisis Ampollosa.

Objective: to analyze how the family care with children and adolescents with Epidermolysis Bullosa is performed. Method: integrative literature review, held in September 2018 with pre-defined protocol, whose eligibility criteria contemplated eight studies in the final sample, which responded to the following question: How is the family care with children and adolescents with Epidermolysis Bullosa performed? Results: the family care along with their children with Epidermolysis Bullosa is influenced by health professionals' assistance, who are unaware of the illness and, therefore, do not provide the necessary guidance, leaving parents unprepared for the daily care with their children. Conclusion: the scientific literature little addresses the experience of care, within the family, dedicated to their children affected by Epidermolysis Bullosa.

Sensibilização das mães de crianças com microcefalia na promoção da saúde de seus filhos / Sensibilización de las madres de niños con microcefalia en la promoción de la salud de sus hijos / Sensitizing mothers of children with microcephaly in promoting the health of their children

RESUMO Objetivo Relatar as experiências educativas das mães ou cuidadoras de crianças com microcefalia, desenvolvidas por equipe acadêmica na temática da promoção da saúde dessas crianças. Método Trata-se de relato de experiência vivenciado por alunos do curso de graduação em enfermagem, discentes e docentes do programa de Pós-Graduação em Saúde e Ambiente da Universidade Tiradentes sobre intervenções educativas realizadas em três unidades de referência no atendimento à criança com microcefalia no estado de Sergipe. A amostra do estudo foi de conveniência. Resultados Participaram da pesquisa 70 mães ou cuidadoras principais de crianças com diagnóstico confirmado de microcefalia, durante os meses de setembro a dezembro. Os eixos temáticos-teóricos selecionados para descrever as atividades foram promoção da alimentação saudável, importância do vínculo mãe e filho e estimulação precoce de crianças com microcefalia. Conclusão A experiência relatada demostrou a importância das estratégias educativas na promoção da saúde de crianças com microcefalia, proporcionando capacitação adicional às mães/cuidadoras para que estas ofereçam um cuidado holístico e humanizado a essas crianças.

RESUMEN Objetivo Relatar las experiencias educativas de las madres o cuidadoras de niños con microcefalia, desarrolladas por equipo académico en la temática de la promoción de la salud de esos niños. Método Se trata de relato de experiencia vivida por alumnos de la carrera universitaria de enfermería, discentes y docentes del programa de Posgrado en Salud y Ambiente de la Universidad Tiradentes acerca de intervenciones educativas realizadas en tres unidades de referencia en la atención al niño con microcefalia en el Estado de Sergipe. La muestra del estudio fue de conveniencia. Resultados Participaron en la investigación 70 madres o cuidadoras principales de niños con diagnóstico de microcefalia, durante los meses de septiembre a diciembre. Los ejes temáticos-teóricos seleccionados para describir las actividades fueron promoción de la alimentación sana, importancia del vínculo madre e hijo y estimulación precoz de niños con microcefalia. Conclusión La experiencia relatada demostró la importancia de las estrategias educativas en la promoción de la salud de niños con microcefalia, proporcionando capacitación adicional a las madres/cuidadoras a fin de que estas proporcionen un cuidado holístico y humanizado a esos niños.

ABSTRACT Objective To report the educational experiences of mothers or caregivers of children with microcephaly, as developed by an academic team with the theme of promoting these children's health. Method This is an experience report by undergraduate nursing students and Health and Environment Post-Graduation students and professors of Tiradentes University on educational interventions carried out in three reference units for the care of children with microcephaly in the state of Sergipe. The study sample was taken by convenience. Results A total of 70 mothers or primary caregivers of children with a confirmed diagnosis of microcephaly during the months of September to December participated in the study. The thematic-theoretical axes selected to describe the activities were promotion of healthy eating, importance of the mother and child bond, and early stimulation of children with microcephaly. Conclusion The experience reported demonstrates the importance of educational strategies in promoting the health of children with microcephaly, providing additional training to mothers/caregivers to provide holistic and humanized care to these children.

Community and family nurse: Present keys, future challenges. / Enfermería Familiar y Comunitaria: claves de presente, retos de futuro.

It is the mission of the Community and Family Nurse through an integral and holistic approach to accompany people from cradle to death in developing their health potential, and promote different family, work and social environments to facilitate this development. Throughout history, various international, European and national organizations have regulated the figure of the Community and Family Nurse, and now their functions, powers and professional performance are fully regulated. The Community and Family Nurse can respond to the needs of a changing population and take on new responsibilities in management and research. Their extensive basic and advanced skills gathered under a rigorous training programme, benefit the health system, the nursing profession, citizenry and its communities. Many challenges remain for the Health Departments of each Autonomous Region to make it possible for this specialty to develop its full potential for improving care.

Nursing strategies for child health surveillance.

OBJECTIVE: to appreciate the strategies promoted by nurses in the context of child health surveillance relevant to early childhood development. METHOD: this is a qualitative study with an inductive thematic analysis of the data, based on the conceptual principles of child health surveillance, and developed through semi-structured interviews with Brazilian nurses working with families in primary health care. RESULTS: the nurses' strategies in favor of child health surveillance focus on actions that anticipate harm with continuous follow-up and monitoring of health indicators. The process of child growth and development is the basis for responses and benefits to health, connection with the daily lives of families, active search, articulations between professionals and services, access to comprehensive care, and intrinsic actions between promotion, prevention and health follow-up. CONCLUSION: child health surveillance actions developed by nurses with families involve knowledge sharing, favor the resolution of problems, increase child health indicators, and strengthen the relationship between health and children's rights, which support the promotion of development in early childhood.

Single Therapeutic Project and Nursing Process from an interdisciplinary care perspective. / Projeto Terapêutico Singular e Processo de Enfermagem em uma perspectiva de cuidado interdisciplinar.

OBJECTIVE: To analyze the single therapeutic project and the nursing process regarding its specificities and intersection points from the interdisciplinary care perspective. METHODIntegrative review of the literature from articles available in the Lilacs, SciELO, MEDLINE and PubMed databases, published in Portuguese, English and Spanish from 2005 to 2015. RESULTS: It was identified 23 articles. From these, 17 on the nursing process, six on the single therapeutic project and one about multiprofessional residency. From the analysis, their specificities and intersection points that describe the alignment and similarities between them were identified in the primary and mental health cares. CONCLUSIONS: The single therapeutic project and the nursing process are aligned in health practices in primary and mental health cares. The multiprofessional residency allows this alignment among them, and the nurse contributes to the interdisciplinary care with the nursing process.

[Midwives and Nurses in Early Childhood Intervention: The Benefit of Additional Qualification]. / Gesundheitsfachkräfte in den Frühen Hilfen: Wie nützlich ist die Zusatzqualifikation? Eine quantitative Studie.

Midwives and Nurses in Early Childhood Intervention: The Benefit of Additional Qualification Abstract. BACKGROUND: Early childhood interventions are locally and regionally organized support services for families from pregnancy until the end of the third year of life. The interventions promote diverse measures to enhance parental skills in order to improve developmental and living circumstances. Midwives and nurses with additional qualification support burdened families in early childhood intervention. METHOD: Within a retrospective survey (standardized interviews, CAPI) mothers' (N = 298) perspective of the benefit of the home visiting support is assessed. Data from two groups were compared: (1) mothers in the care of a midwife or nurse with additional qualification (GruppeGFK + Quali) and (2) mothers cared for by a midwife or nurse without additional qualification (GruppeGFK). RESULTS: (1) Families with weighted levels of psychosocial burdens reported an enhanced need for help. (2) Midwives and nurses with additional qualification support more frequently families with high levels of psychosocial burdens. (3) Mothers with care of midwives and nurses with additional qualification reported this support as more useful in relation to every day demands than mothers with regular care after birth (questionnaire for evaluation of the received support: GruppeGFK + Quali: mean = 2.57; GruppeGFK : mean = 1.97; t (121) = 2.799, p = .003). CONCLUSION: The study complements results of national and international studies showing that families with high levels of psychosocial burdens accept home visiting support. Furthermore, this support seems to be useful. An increase of the offer and the additional qualification is recommended for improving the developmental and living conditions of families with psychosocial burdens.

Impact of family integrated care on infants' clinical outcomes in two children's hospitals in China: a pre-post intervention study.

BACKGROUND: Most Neonatal Intensive Care Units (NICUs) in China have restricted visiting policies for parents. This also implicates that parents are not involved in the care of their infant. Family Integrated Care (FIC), empowering parents in direct care delivery and decisions, is becoming the standard in NICUs in many countries and can improve quality-of-life and health outcomes of preterm infants. The aim of this study was to evaluate the impact of a FIC intervention on the clinical outcomes of preterm infants with Bronchopulmonary Dysplasia (BPD). METHODS: A pre-post intervention study was conducted at NICUs in two Chinese children's hospitals. Infants with BPD were included: pre-intervention group (n = 134) from December 2015 to September 2016, post-intervention (FIC) group (n = 115) and their parents from October 2016 to June 2017. NICU nurses were trained between July and September 2016 to deliver the FIC intervention, including parent education and support. Parents had to be present and care for their infant minimal three hours a day. The infants' outcome measures were length-of-stay, breastfeeding, weight gain, respiratory and oxygen support, and parent hospital expenses. RESULTS: Compared with control group (n = 134), the FIC group (n = 115) had significantly increased breastfeeding rates (83% versus 71%, p = 0.030), breastfeeding time (31 days versus 19 days, p < 0.001), enteral nutrition time (50 days versus 34 days, p < 0.001), weight gain (29 g/day versus 23 g/day, p = 0.002), and significantly lower respiratory support time (16 days versus 25 days, p < 0.001). Oxygen Exposure Time decreased but not significant (39 days versus 41 days p = 0.393). Parents hospital expenses in local Chinese RMB currency was not significant (84 K versus 88 K, p = 0.391). CONCLUSION: The results of our study suggests that FIC is feasible in two Chinese NICUs and might improve clinical outcomes of preterm infants with BPD. Further research is needed to include all infants admitted to NICUs and should include parent reported outcome measures. Our study may help other NICUs with limited parental access to implement FIC to enhance parental empowerment and involvement in the care of their infant.

Music therapy and musical stimulation in the context of prematurity: A narrative literature review from 2010-2015.

AIMS AND OBJECTIVES: To examine empirical studies of musical stimulation and music therapy carried out with preterm infants and their parents published from 2010-2015. BACKGROUND: Prematurity constitutes a global health problem that can impact the development of the preterm infant and the well-being of the parents. Music-based interventions may benefit the infant, parents and their relationship. In our review, we distinguished between musical stimulation and music therapy, as we found no previous studies that had made this distinction. DESIGN: This is a narrative literature review. METHODS: A search was undertaken in PubMed, PsycINFO and LILACS using the terms "music," "music therapy," "singing," "prematurity" and "preterm." Thirty studies were included and analysed according to the following categories: (i) aims of the study, (ii) participants, (iii) design, (iv) type of intervention, (v) assessment and measures and (vi) main results. RESULTS: The vast majority of the studies focused on the preterm infants and used an experimental design. Few studies carried out family-centred interventions, despite this having been noted as an important factor in effective interventions. Musical stimulation studies used more recorded music, whereas music therapy studies used more individualised interventions with live music. CONCLUSIONS: Both musical stimulation and music therapy demonstrated significant effects on preterm infants and their parents. However, compared to musical stimulation studies, interventions performed by music therapists provided more individualised care and tended to show greater effects on infants' physiological and behavioural responses. RELEVANCE TO CLINICAL PRACTICE: Our review showed that music therapy interventions may provide individualised, effective and family-centred care. There is a significant need for these types of interventions in the neonatal intensive care unit (NICU).

Projeto Terapêutico Singular e Processo de Enfermagem em uma perspectiva de cuidado interdisciplinar / Proyecto Singular Terapéutico y Proceso de Enfermería en una perspectiva el cuidado interdisciplinario / Single Therapeutic Project and Nursing Process from an interdisciplinary care perspective

Resumo OBJETIVO Analisar o Projeto Terapêutico Singular e o Processo de Enfermagem quanto as suas especificidades e pontos de interseções, na perspectiva do cuidado interdisciplinar. MÉTODO Revisão integrativa da literatura de artigos disponíveis nas bases de dados Lilacs, SciELO, MEDLINE e PubMed, em português, inglês e espanhol, publicados no período de 2005 a 2015. RESULTADOS Foram identificados 23 artigos. Destes, 17 sobre o Processo de Enfermagem, seis sobre o Projeto Terapêutico Singular e um sobre residência multiprofissional. Da análise identificaram-se as suas especificidades e pontos de interseções que descrevem o alinhamento e similaridades entre os mesmos, nos serviços de atenção básica e saúde mental. CONCLUSÕES O Projeto Terapêutico Singular e o Processo de Enfermagem se alinham nas práticas de saúde nos serviços de atenção básica e saúde mental. A residência multiprofissional possibilita esse alinhamento dos mesmos, e o enfermeiro contribui para o cuidado interdisciplinar justamento com o processo de enfermagem.

Resumen OBJETIVO Analizar el Proyecto Singular Terapéutico y el Proceso de Enfermería como sus características específicas y puntos de intersecciones, desde la perspectiva de la atencíon interdisciplinaria. MÉTODO Revisión integradora de los artículos disponibles en las bases de datos LILACS, SciELO, MEDLINE y PubMed, en portugués, Inglés y Español, publicado en el período 2005-2015. RESULTADOS Se identificaron 23 artículos. De éstos, 17 del proceso de enfermería, seis en el Proyecto Singular Terapéutico y uno residência multiprofesional. El análisis identificó si sus especificidades y puntos de intersecciones que describen la alineación y similitudes entre ellos en la atención primaria de salud y salud mental. CONCLUSIONES El Proyecto Singular Terapéutico y el Proceso de Enfermería se alinean en las prácticas de salud en la atención primaria de salud y salud mental. La residência multiprofesional permite esta alineación de los mismos, y la enfermera contribuye a la atención interdisciplinaria desde justo al PE.

Abstract OBJECTIVE To analyze the single therapeutic project and the nursing process regarding its specificities and intersection points from the interdisciplinary care perspective. METHODIntegrative review of the literature from articles available in the Lilacs, SciELO, MEDLINE and PubMed databases, published in Portuguese, English and Spanish from 2005 to 2015. RESULTS It was identified 23 articles. From these, 17 on the nursing process, six on the single therapeutic project and one about multiprofessional residency. From the analysis, their specificities and intersection points that describe the alignment and similarities between them were identified in the primary and mental health cares. CONCLUSIONS The single therapeutic project and the nursing process are aligned in health practices in primary and mental health cares. The multiprofessional residency allows this alignment among them, and the nurse contributes to the interdisciplinary care with the nursing process.